Worth et al. (2009) Vulnerability and access to care for South Asian Sikh and Muslim patients with life limiting illness in Scotland: Prospective longitudinal qualitative study
Worth et al. (2009) outline their longitudinal study which attempts to understand the difficulties that Muslim South Asian and Sikh patients suffering from life limiting illnesses encounter when accessing services in Scotland. The study also proposes potential solutions for some of the obstacles identified. The study revealed a number of problematic areas. These included an apparent lack of culturally appropriate care, services constrained by resource issues and incidences of both racial and religious discrimination. Those found to be most vulnerable were more recent arrivals with limited command of English or no family advocate. Notably, the South Asian and Sikh community only has limited awareness of the function of hospices and associated services. Although the study recognises that robust diversity policies are in place in Scotland, Worth et al. (2009) stress the necessity for active case management and a focus on ethnic minority needs. These steps are needed in order to meet the required provision of palliative care for all South Asian Sikh and Muslim patients, providing them with full access to high quality end-of-life care.
Worth, A., Irshad, T., Bhopal, R., Brown, D., Lawton, J., Grant, E. and Sheikh, A. (2009) Vulnerability and access to care for South Asian Sikh and Muslim patients with life limiting illness in Scotland: prospective longitudinal qualitative study. British Medical Journal, BMJ 338: b183.